Frequently Asked Questions
What is Self-Determination?
Self-Determination is a term used by advocates and associations to describe how a person should run their lives. Those without disabilities make decisions in their lives every day - where to eat, where to work, choosing friends, choosing places to go, choosing activities in their lives; yet, the disabled, in order to receive services to support them are given those choices. They are told by agencies that deliver the services where to live, who to live with, what and when to eat, if and where they will work and community activities. They have no choices, no freedom and no power. With self-determination a person with a disability CAN have freedom, choice, more control over their lives.
Self-Determination is an innovative project in New York State that works on the concept of flexible funding. Individuals with developmental disabilities, such as autism, actively manage their own budgets using a Medicaid funded waiver service called Consolidated Supports and Services (CSS). The person, with the aid of a Circle of Support , ( a group of people the person chooses to surround them such as family, friends, and the Medicaid Service Coordinator who is currently working with the person), to authorize payment for the supports and services they have chosen together. The Circle of Support and the individual hire staff of their own choosing, pay for community services that are integrated and help the individual to access the community more and thus, have a full life.
What is the difference between Self-Determination and Agency supports?
Imagine hiring the staff you or your child enjoy being around, not someone that an another person who only sees you maybe once a month, chooses for you. You and Circle of Support know your needs and your likes and dislikes best. The Circle of Support understands you and your disability. Tired of having no one who understands autism? Well, you can now hire staff that you can train and who will learn to know you or your child the best. Your staff will finally get paid a decent wage, so the chances of turnover or no-showing is very minimal. The staff used in these programs tend to stay with the individuals for several years, becoming a key part of the family.
Who pays the fees for the Broker services?
The Broker fees are paid for out the budget developed by OMRDD/CSS. No money is ever paid directly by you or the family to the broker directly.
What ages do you work with? Is there a certain age requirement for S.D.?
The age of a person with autism or other developmental disability is not a factor in this program. The main factor is whether or not Self-Determination is right for you. According to the Self-Advocacy Association, Self-Determination is best suited for individuals and families who are willing to take on more self-direction, more control of their lives and more responsibility.
How do I get started?
Call and we'll talk! We'll discuss step-by-step the process and if it's right for you! (607) 754-9694 or jcolletti@stny.rr.com